Diagnosing Lyme disease is no easy task. Given that there are no reliable
tests currently and Lyme disease mimics so many other diseases (see
the Symptoms page), it makes it very difficult even for Lyme specialists.
Unless you are fortunate enough to develop the tell-tale bulls-eye rash and/or
a tick is found attached and is tested and determined to carry Lyme disease, it
is impossible to have a 100% accurate diagnosis.
As of right now, clinical diagnosis remains the most important and
reliable method for Lyme disease and its many co-infections. Although
testing can help in confirming clinical diagnosis, it should not be relied upon.
False negatives are common with current laboratory tests for Lyme disease.
There is much controversy surrounding the proper diagnosis and
treatment of this disease. It is important for you to educate yourself on all
aspects of this disease and to get a good understanding of how the Lyme
spirochete works, why testing is unreliable, and why diagnosis and treatment
are so difficult. There is a lot of conflicting information available, so I
encourage you to do as much research as you can.
Don't rely on what you "hear" or what you have been told by others. Look
behind the surface of information to find out who is behind it. Ask yourself
if it makes sense. Look for the scientific evidence to back it all up. Sadly,
money, politics, and greed infiltrate every aspect of our society, so you have
to be able to discern fact from fiction and propaganda. You have to learn to
think for yourself, ask questions, and read between the lines.
If you suspect that you may have been infected it is crucial that you go
to see an LLMD or Lyme specialist for diagnosis. Unfortunately, many
general practitioners and medical professionals have limited knowledge and
understanding regarding the truth about this disease. Although most of them
will claim to know all there is to know and may have the best of intentions,
they usually draw their knowledge from the 2006 IDSA Guidelines.
These guidelines are based on limited scientific studies, do not include
much of the clinical evidence that is available, and are often used against the
proper diagnosis and treatment of Lyme disease. These guidelines are in
desperate need of revision and have come under a lot of scrutiny in recent
times due to conflicts of interest.
At the same time, be aware that there are "LLMD's" popping up
everywhere. And wherever there is desperation and need, there is also
the probability of greed and fraud. If you go to any doctor and they tell you
that they have "the cure" or their way is the best way, or that they have a
100% success rate (or close to it), consider going to another doctor. I almost
travelled 2000 miles to see a Lyme doctor that claimed to have a patent
pending cure for Lyme disease. I quickly realized that he was probably not the
best Lyme doctor, even though he thought he was. And I saved myself
thousands of dollars, time, and heartache.
Having said all of this, I feel it is important to warn you against
self-diagnosis and treatment. Many Lyme patients become very frustrated
with constantly hearing that there is nothing wrong with them, that all of their
tests are normal, that it is "all in their head." Some who do have a positive test
result and receive some treatment often lose medical insurance coverage or
simply can't afford treatment by an LLMD.
When they are forced into these desperate states and are as sick as many
Lyme patients are, people tend to migrate towards diagnosing themselves
based on symptoms and treating themselves with alternative remedies. It has
become increasingly easier to do so with the accessibility of information on the
Although many patients have had some success with this, I strongly
urge against it. As I have stated on other pages of this website, the
symptoms of Lyme disease are so vast and many that there are many
other diseases and illnesses that could be present. For example, Candida
overgrowth is very common in our modern culture and when it becomes a
severe infection, its symptoms and risks are almost identical to Lyme
symptoms. Particularly if you have not had a positive Lyme test and did not
find a tick or develop a rash, I would not jump to the assumption that it is
Please understand that Lyme disease is very complex. It affects the
immune system and all facets of the body and mind to a great extent, and it is
very difficult to eradicate. Treating Lyme disease can cause many other
problems and issues, all of which can be dangerous. Not treating it and
monitoring it properly can be equally as dangerous.
PLEASE go to an LLMD or Lyme Literate Doctor for diagnosis and
treatment of this disease. It is not something you want to risk
experimenting with yourself on. If you are fortunate enough to have a
general practitioner who is open-minded and somewhat literate, you may be
able to have them work with an LLMD on your treatment, which sometimes
helps with insurance coverage. Either way, it is important for you to
understand the disease to ensure that you are receiving proper
diagnosis and treatment from whatever specialist you end up going to.
Take a copy of the Lyme Flyer and Pertinent Information for Medical
Professionals to all of your medical professionals, even if they are not treating
you to help spread awareness.
Back to Top